![]() Factors such as education and length of residency in the US, lack of insurance, lower socioeconomic status, and lower familiarity with genetics all contribute to this disparity. Prior studies have shown that members of racial and ethnic minorities are less likely to pursue medically recommended genetic testing and remain underrepresented in genomic research. įederal investments in precision medicine and genomic research have stressed the importance of increased participation of underrepresented communities. It is unclear how underrepresented populations will respond to new forms of genomic screening, especially individuals who may be skeptical of health-care institutions, have low health literacy, or live in communities with limited access to new health-care technologies. In particular, issues of access and utilization in low-resource communities require attention. However, for genomic medicine to reach its full potential, several issues must be addressed. Genomic medicine is expected to have a significant impact on health-care delivery and patient outcomes. These results inform ongoing efforts to increase the availability of genomic medicine to underrepresented populations and add to our understanding of sociocultural drivers in the adoption of precision medicine. Our results suggest that many Latino patients in the US see value in genomic screening and have limited concerns about its potential to cause harm. Discussion: This is one of the first studies to examine the experiences of Latino individuals receiving genomic screening results. Participants felt that genomic screening was worthwhile. Most felt it was better to know about a genetic predisposition to disease than to remain uninformed. Some participants had misunderstandings about the scope of the test and the potential implications of their results. Those concerns related to potential loss of privacy, misuses of genomic information, and the possibility of receiving distressing results. Participants tended to have few concerns about genomic screening. Participants viewed the benefits of genomic screening in relation to not only their personal health but to the health of their families and their communities. Participants described mixed motivations for pursuing genomic screening. Results: Fifty individuals completed an interview 39 were conducted in Spanish. Interviews were audio-recorded, transcribed, and translated. Questions focused on motivations for pursuing genomic sequencing, concerns about receiving genomic screening results, and perceived benefits of receiving genomic information. In-person, semi-structured interviews were conducted in either Spanish or English by a bilingual, bicultural interviewer. Methods: Participants were recruited at a federally qualified health center in the USA. Purpose: The aim of the study was to characterize experiences of Latino participants receiving genomic screening results. ![]()
0 Comments
Leave a Reply. |
AuthorWrite something about yourself. No need to be fancy, just an overview. Archives
December 2022
Categories |